The words coming out of my mouth…
March 9, 2008 – 11:57 pmCan you understand the words that are coming out of my mouth?
Recently, I transposed a couple of names in a post. Nothing came of it. Months earlier, I transposed two names and all hell broke loose. I am not going to share those names because I would really like not to attract the attention of the person I thought I was speaking to. But I do want to share the story so that folk will understand one of the down sides.
At a convention the year before I met my wife, a fellow author decided it was high time I was hooked up. That author had some previous doings with my former lover and announced afterwards that I must have a thing for red hair and big boobs because that young lady had nothing else going for her. Between the time of those doings and the convention, that lover and I had gone our own ways. My fellow author decided me and a certain someone were a good match and mentioned that she would be introducing us at he convention. It uh, well it was not a good match & I did not pay much attention to her at he convention. I can’t relate much more of that story because I don’t really remember the details. Looking back, it might have been the convention where my wife and I met. I don’t really recall. What I do recall is that the young lady I was introduced to was none too pleased that I seemed to ignore her.
Later, I was injured. Since that date, I discover more and more each day how many memories I no longer seem to have. Making things worse, the main problem with my memory is that things do not seem to translate well between short and long term memory. But the absolute worst part of it from an online perspective is that I have a rather serious problem with aphasia. I say one word when I mean another. I hear one word when you say another. Evidently, I read one word when you have typed another.
So, years later someone joins Pagan Nation. She and I had a few private topics back and forth, but when the explosion took place I hadn’t remembered a one. Instead, I looked at her name and saw… yep, you guessed it the woman that I had been introduced to a few years earlier. Thinking I had acquired yet another stalker (not being boastful, I’ve had a few) I went off on the women, telling her that she is nothing to me other than some words on a page. It was months before I figured out that it was not the same woman. In fact, she was not even from the same country. What do you say? Woops?
The truth is, these issues are not something that casual acquaintances are prepared to deal with. Imagine having a conversation with me and I say: “I have absolutely no idea what you are saying?”, what would you do? Well, if you are like 90% of the people I have had this experience with, you will say the exact same thing only LOUDER! I would reply that I can hear the words coming out of your mouth, I just can not understand them. People tend to then become offended, thinking I am telling them that they make no sense what so ever. If I explain that I have a problem with what I call reverse aphasia (a cognitive impairment), then they start treating me like Rainman.
We live in black and white world of stereotypes. If I say I am cognitively impaired, people tend to think that I couldn’t possibly do something like computer programming. Oddly enough while I have almost no luck learning from a book, I seem to be able to learn from looking at source code much better than before the accident. It’s just words that I have a problem with. So what is a professional author to do? The answer is obvious, change his profession.
For this reason, I am announcing that my wife and I are moving to Los Vegas. Naw, just kidding. In all seriousness, I am working on a computer project which I think might be a rather hot topic in a year or so. The concept is based on the idea that the mass media still has control over things the same way they did before the Internet. Myspace.com is owned by the same mega billion dollar corporation as Fox News, it has been since 1995 (and you thought a guy named Tom ran da place). Youtube.com is owned by Google, Facebook is quickly becoming its own mega corporation. I think I have conceived of a way to finally break with the traditional way of viewing the world from the eyes of the multimillion-dollar corporations and begin viewing it from the eyes of the people.
If I ever get the thing running, part of the announcement is going to involve information about my brain damage. I am hoping that my strives will demonstrate to the world that folk with cognitive impairments are challenged just as are people with physical impairments and like people with physical impairments, folk like me can continue to improve the state of their being while contributing to the whole.
Now how does a person explain that without sounding like he is complaining?
8 Responses to “The words coming out of my mouth…”
You know I do understand what you are saying. I have some what the same thng but not as bad. There are days that things just does not make sense or I can’t find the word I need/want to use so I have to use more to say something or try and explain what I am saying. If you told me you didn’t understand what I was saying before writing this I would try to say it in a different way. Not louder. Not understanding and not hearing are two seperate meanings to me. Is it because I don’t always understand a word’s meanings that makes it different? Don’t know.
I think you can understand why I am having trouble with the online school thing where the computer section is concern. I have never been able to wrap my mind around programing. I have been told that a good head for math helps when it comes to programing. Plus you have to think in a different way with code. Math use to be a bad thing. The evil satan of learning for me. LOL
Yes we do live in a world of sterotypes. Have you heard me say the words “But you don’t look sick!” People who have Fibromyalgia have much the same problems as you as far as the brain. We also have the constant pain and something we call brain fog. Brain fog is where the brain does not work as well of think as well as a “normal” person. The constant pain muddies it up. Now add to that the constant pain from my back nerves firing over and over on themselves.
Do I sound like I am whining?
Will you ever be able to explain any of this without sounding like you are complaing? Probably not.
So whine!
Let people know what the Hell it is like! Some will never understand and those you don’t worry about. Others will go “oh” and try to work with you not against you.
Besides hasn’t your head always been screwed on different from others? (big grin)
By Rhiannon on Mar 10, 2008
Rhiannon - That is funny. I feel more at home with computers than with people. They make so much more sense to me. Its like this, something doesn’t work, well I am not explaining myself to it correctly and I try again. Humans, something doesnt work and they get all angry.
By A.J. Drew on Mar 10, 2008
Humans are a living breathing felling thing.
Computers are cold and dead. They can’t hug you or feel your pain.
I wold say they can’t talk but the new one I have does with the GPS.
AJ
When the humans get mad at you for making mistakes you can either ignore them, go off on them or ask if they never make mistakes.
No one is perfect and everyone needs to face that fact. If they can’t then THEY have the real problem.
I was talking with Starfire about this post. He said you have built the pathways because of constantly useing them for programing so that has more or less repaied itself. Keep working on the things you have problems with and they should be able to repair themselves too.
(did that make sense????)
By Rhiannon on Mar 10, 2008
Rhiannon - It does make sense, but its not what is going on. Yes, the brain will rebuild new pathways. But computer skills and the abuility to learn by seeing are not things that were affected in the first place. I guess what I am saying is, if you have a stroke which renders your left arm paralized, your right arm will become stronger. Not automaticly, but because you depend on it more.
I have a video that made my mother cry. It was me leading circle for hundreds upon hundreds of people, keeping their attention all the while. Now I loose them after, Hi I’m A.J. Drew. I will no longer be speaking at Universities, I will no longer be writting books (although I keep trying), its just not me anymore.
Ah, but computer programming and the 3 dimensional artwork of forging, now that can be me. My right arm getting stronger. Right now, blacksmithing and pritty much anything physical is out, but in about a month things should change in that department. Even then, I doubt it will be an 8 hour day, so I have the secret plan to take over the world that me and Pinkey are working on.
By A.J. Drew on Mar 11, 2008
But Brain why don’t weasles have ears?
By Rhiannon on Mar 11, 2008
Pinkey - Uh, weasels have ears. In fact, I gotta weasel in my pocket. Ya wanna pet him?
By A.J. Drew on Mar 11, 2008
Uh not if he spits.
Have your wife pet him and find out……..LOL
But Brain why does the Queen ride a jet ski?
By Rhiannon on Mar 11, 2008
Oh crap! I hit submit before finishing!
My son loved Pinky and the Brain. To amuse me he would do the english accent and ask those questions that Pinky would ask. I would die laughing.
By Rhiannon on Mar 11, 2008